I found out in the spring of 2022, when our baby was diagnosed prenatally as having Trisomy 18. The initial diagnosis from an ultrasound was confirmed by non-invasive prenatal testing. It was hard to hear that our child would be severely disabled if she were to live. It was even harder to hear she would likely die before birth, or soon thereafter. My wife had already had two miscarriages in the previous two years. It was painful to realize that, although our little daughter was doing well in utero, she probably would not live very long. In our initial genetic counseling, we were informed abortion was an option. Though we didn’t have statistics, we knew intuitively that most people in our situation would choose abortion. But because of our Christian faith, we didn’t consider it.
When genetic conditions such as Trisomy 21 (Down syndrome) and Trisomy 18 are diagnosed prenatally, parents may face a very difficult dilemma. They must either prepare themselves to provide an extraordinary level of care for their child — perhaps for the rest of their lives — or choose to abort. In many cases, parents sadly choose abortion.
According to a report from 2017, among women who chose to have prenatal screening and who then received a diagnosis of Down syndrome, the abortion rate was 67 percent in the U.S. (1995-2011); 77 percent in France (2015); 98 percent in Denmark (2015); and close to 100 percent in Iceland. The article quotes an Icelandic geneticist who said, “My understanding is that we have basically eradicated, almost, Down syndrome from our society — that there is hardly ever a child with Down syndrome in Iceland anymore.”
In the fall of 2020, I had an article published in The Federalist that expressed my admiration for Justice Amy Coney Barrett’s pro-life stance, especially in view of her having a child who has Down syndrome. Since the vast majority of babies diagnosed prenatally with Down syndrome are aborted, I admired her integrity in keeping her child. My own brother has Down syndrome, so I know firsthand how challenging and rewarding it can be to provide care for someone with disabilities.
Of course, being the sibling of someone with disabilities is different from being the parent of a child with disabilities, as I found out in the spring of 2022, when our baby was diagnosed prenatally as having Trisomy 18. The initial diagnosis from an ultrasound was confirmed by non-invasive prenatal testing. It was hard to hear that our child would be severely disabled if she were to live. It was even harder to hear she would likely die before birth, or soon thereafter. My wife had already had two miscarriages in the previous two years. It was painful to realize that, although our little daughter was doing well in utero, she probably would not live very long.
In our initial genetic counseling, we were informed abortion was an option. Though we didn’t have statistics, we knew intuitively that most people in our situation would choose abortion.
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